Speaker: Dr. Carolina Barnett-Tapia

Dr. Carolina Barnett-Tapia, M.D., Ph.D., is an Associate Professor in the Department of Medicine, Division of Neurology and the Institute of Health Policy, Management and Evaluation, University of Toronto. She is a clinician-scientist at the University Health Network, Toronto, and Neurologist at the Prosserman Family neuromuscular clinic and the Elisabeth Raab neurofibromatosis clinic. She is a member of the Response Evaluation in Neurofibromatosis and Schwannomatosis (REiNS) international collaboration, and member of the scientific council of the Myasthenia Gravis Foundation of America.

Dr. Barnett-Tapia’s main research interest is patient-centered outcomes and patient preference elicitation in patients with neuromuscular disorders and neurofibromatosis. This includes capturing patients’ perspectives on their symptoms and activity limitations and understanding their preferences regarding treatment, with the goal of incorporating patients’ views in clinical decision-making.