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A Tale of Two Tic Registries: Successes, Failures and Advice for New Researchers

  • Toronto Western Hospital 399 Bathurst Street Toronto, ON, M5T 2S6 Canada (map)

Speaker: Dr. Tamara Pringsheim

Moderator: Dr. Renato Munhoz

Objectives:

  1. To review the creation and objectives of the Calgary Tic Disorders Registry

  2. To highlight successes and failures along the way

  3. To discuss strategies to obtain research funding for a long-term project

  4. To (hopefully) provide helpful information to anyone who wants to start a clinical registry

Dr. Tamara Pringsheim is a neurologist and professor at the University of Calgary, and medical lead of the Tourette and Pediatric Movement Disorders Program.  She is an evidence-based medicine methodologist for the American Academy of Neurology and chair of the International Parkinson’s Disease and Movement Disorders Society Tic Disorders and Tourette Syndrome study group.  From 2022 to 2024, she has been named to the Clarivate Highly Cited Researchers list, which recognizes researchers who have authored multiple Highly Cited Papers which rank in the top 1% by citations for their field and publication year in the Web of Science over the past decade.